Endometriosis is a disorder that affects around 1 in 10 women. Despite this, many of us don't know what it's actually like living with it. So, this week, for Endometriosis week, we have got our very own Nikeisha in to discuss her own experience and answer all of our questions!
When did you first suspect you had endo?
I was about 18, periods had never really bothered me, and what seemed like all of a sudden, they became really painful, heavy and lasted
My symptoms have actually changed over the years. My periods have calmed down a bit and are a bit more regular which is great but the other symptoms I have are:
My doctor at 18 suggested I had Endo based off my symptoms at the time, so I booked in for the surgery to diagnose and treat. But I
cancelled at the last minute, wanting to try alternative ways to treat it first. A few years later, I did have the surgery and they
confirmed it was Endo.
Stage 4, which is the most severe unfortunately. But the good news is, stage 4 doesn’t necessarily mean horribly painful periods. Your
level of pain does not always reflect the severity of the disease.
Honestly, the best treatment for me has been a clean diet (which I do struggle with, a lot!) and natural hormone support. Endo is a
hormone-dependant and inflammatory condition. So, an anti-inflammatory diet, lots of wholefoods, minimal dairy, processed carbs and
sugars. And heat packs, get a really good heat pack!
What has been the toughest thing to overcome?
Knowing that there’s no cure, and the thought of this being something I have to manage for the rest of my life, or at least until
menopause. That’s gotten me pretty down before.
Opening up about it! For so long I felt like I was the only one that could possibly be feeling the way I was, which is crazy because it’s
so common, 1 in 10 women actually. But opening up about it, realising just how many girls and women around me were going through the same
thing, and actually asking for advice or help has been incredible. Along the way, just by doing this and asking for help, I’ve picked up
some really helpful bits of advice from other women.
I would say the biggest myth is that pregnancy cures endo. I believed that for years. Unfortunately, it’s not true.
Do what feels right for you. I’ve seen so many different doctors and naturopaths over the years. All recommending so many different types
of treatment. I’ve had to do a lot of trial and error but listening to my body and doing what I know feels right has helped. What works for
me, might not work for you.
Anything else you would like to say?
YOU ARE NOT ALONE in this. Please reach out, reach out to me if you want to chat about it. Also, there are some really awesome IG accounts that I follow. Sometimes, a random post will pop up and remind me that what I'm feeling is ok, that I'm not crazy. And that’s really nice.
If you have endometriosis and are looking for support, advice or just want to learn more check out these incredible accounts and organisations...
Endo Girl Gang